The FISH results from the amnio are in. It is confirmed, we are having a boy. Good thing too, I already picked out the name.
So good news is also bad news. Triploidy has been confirmed. For some reason I was not shocked. I couldnt cry anymore, there is nothing left. My tears are drained, and my body is too physically tired for more emotions right now.
Triploidy is lethal. Again, we were asked if we wanted to terminate. We still can if we want. I said no. I didnt fight this hard and get so close to almost laying my baby to rest too early. This is what I told the Geneticist from Abbott...
I want a team of doctors who are not going to even use the term "lethal" ever when speaking to me about my baby. I already know that, I already know what I am dealing with and what my choices are. I do no need to be reminded by them. The kicks and punched of my baby remind me; remind me of how blessed I am to be trusted with this life.
I want a team of doctors who are going to continue in caring for me and my baby as far as this pregnany will take us. I want ateam of doctors who have the same mindset and hope as I do; that is to not give up. I need them to focus on life and not death. I need them to think of what to do to save the baby. The end goal is for the baby to be born alive. I will NOT deliver without a C-section. The risks for me to have a c-section are far less severe than the risks of a vaginal birth to a triploidy or spina bifida baby; now add the two together.
All my care is to be transferred from CentraCare to Abbott. I will be meeting with the Neonatal people and taking a tour of the NICU at Children's. We will be using this time to create our team of doctors. Any one who stands in our way and says "no" will be kicked out of the team and replaced by someone who says "yes".
This is my life, my body and I am tired of people telling me what to do. I am calling the shots now. They work for ME! It is not the other way around. If one more person says the word "lethal" to me again, I will completely cross them out as a respectable resource and find another way.
Our baby has already proven to be a miracle in itself. Supposedly triploidy babies do not even make it this far in the womb. Mine has. We saw major defects in ultrasound 1 and 2, and then they were gone, completely gone in ultrasound 3 and 4! Some one explain that!
I am still very scared and nervous, for my life and my baby's. But I can go on knowing that I am a fighter and so is my son. I am scared to loose my baby. I am also scared that my baby might actually live, and then I have to learn how to care for him. I am just plain scared.
Today I am supposed to be going to Centracare to be tested for preclampsia. This is the major risk of continuing the pregnancy. Hope it turns out well...
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2 comments:
God is an awesome God! I am praying for you, baby Elijah and your entire family! You are the strongest mom I know, and I don't even know you.
"For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future." (Jeremiah 29:11)
I was so anguished when I read the Moms Like Me thread where you expressed feeling a lack of support through this wild and horrible rollercoaster ride. If you ever need an ear, any hour of the day or night, track me down through my blog: http://krinkeland.blogspot.com.
Dear MrsM,
I came across your postings through a friend on facebook, and I wanted to offer my support and encouragement as you and your family go through this journey. I admire your strength and your openness, and that you are able to be so honest with your thoughts and struggles as you have faced a multitude of opinions from so many different doctors.
My story is nothing like your own, but my second daughter was given a 5% survival chance at her time of birth. I can understand somewhat the fear and confusion you are experiencing. Keep clinging to our wonderful Savior, and He will hold you close and provide unsurpassable peace. I have always been amazed that during my weakest moments, I have felt His grace and presence more than any other time.
I would also like to encourage you from a NICU nurse's perspective, having worked in the profession for 7 years. I have witnessed many parents deliver their beautiful babies that doctor's didn't give chances to. I have never encountered a single parent that has not been so thankful and cherished every single minute and day that they had to spend with their babies. Your memories of your beautiful son will go back to remember how he kicked and prodded you as he safely sat within the confines of his mommy's tummy. You will remember and cherish your delivery, and holding him and loving him within your arms.
Whether your time with him post-delivery is short, and whether he proves everyone wrong and survives for years (as I have seen many a mommy give testimony to here on your blog!), you will never regret any of those memories, those moments, feeling his warm little body against yours... I know you will be at peace with your decision to bring him into this world.
Many blessings as you face the road ahead, and keep trusting in our gracious Father!
Much love to your family,
Suzanne in Eastern Tennessee =)
www.weloveflarasophia.blogspot.com
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